UNPAC - Understanding the policy and system dynamics to improve Palliative Care in Lao PDR

In Lao PDR, many people with advanced and irreversible illnesses experience serious suffering that could be eased with proper care—but the health system often lacks the support to provide it. Palliative care helps people live their final days with dignity and as little pain as possible, yet globally only a small percentage of those in need receive it. The situation is especially challenging in low- and middle-income countries like Lao PDR, where health services are focused on treating infectious diseases and extending life, leaving end-of-life care largely overlooked.

This research project aims to understand how the health and social systems in Lao PDR can better respond to the needs of people experiencing serious health-related suffering (SHS) due to incurable conditions. The study will estimate how many people need palliative care and how many are currently going without it. It will also explore how well the health system is set up to provide this care, and what barriers prevent people from accessing it.

Over three years, the research team will carry out four studies. These will include interviews with families about the causes and nature of suffering at the end of life, surveys with patients who are still living with serious illnesses, and assessments of how ready health facilities are to deliver palliative care. Importantly, the project will bring together patients, families, healthcare workers, and decision-makers to co-design a computer-based tool called a “systems dynamics model.” This model will help predict how different policy choices—like increasing access to pain relief medication—could improve palliative care and reduce suffering.

By the end of the project, Lao PDR will have its first comprehensive picture of the need for palliative care, the gaps in current services, and practical solutions for improvement. The goal is to give policymakers clear evidence and tools to design strategies that reduce unnecessary suffering and support more compassionate, effective care for people with life-limiting illnesses.

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Patricia Arnaiz

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